tag:blogger.com,1999:blog-4651164539530511360.comments2013-08-13T03:45:30.231-05:00Babe on a BargainAmy Z.http://www.blogger.com/profile/02771757514672411782noreply@blogger.comBlogger58125tag:blogger.com,1999:blog-4651164539530511360.post-459995643092975212013-08-13T03:45:30.231-05:002013-08-13T03:45:30.231-05:00In the meantime, I have some limited classes sched...In the meantime, I have some limited classes scheduled in the studio. In July there will be classes <a href="http://www.roshremovals.co.uk/packing-materials/" rel="nofollow">packing materials</a> scheduled in the new place and next fall, even more of them. If you are on the list, I will keep you posted. In the meantime, Elizabeth J. Nealhttps://www.blogger.com/profile/01824134730760179008noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-47059253126069159372013-06-13T05:57:38.777-05:002013-06-13T05:57:38.777-05:00Hi. I'm the anonymous that has 2 fragile x gra...Hi. I'm the anonymous that has 2 fragile x grandchildren on the other side of the world (about 2 months ago) (from the UK). New to social media so anonymous for the moment. Ask your PC repairer to ship you your original hard disk back. It is probable that they fitted a new one and loaded just the operating system on it, so potentially you may be able to get your photos back from the original disk, with a little guidance. paul(at)com-mend.co.uk<br /><br />Kindest regards<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-50066738114841338212013-06-12T22:35:11.401-05:002013-06-12T22:35:11.401-05:00Thanks so much for taking the time to reply :-) B...Thanks so much for taking the time to reply :-) Baclofen is missing the key component that made arbaclofen so affective- the other arm of the pharmacological combination that produced such dramatic results in the laboratory before STX209 began human trials. We are hopeful and praying for the future. There are many more studies ahead and we are working with our physicians to find the best fit for Abe!Amy Z.https://www.blogger.com/profile/02771757514672411782noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-62883315833238723262013-06-11T10:08:42.578-05:002013-06-11T10:08:42.578-05:00Hi. I don't know if this will be of use to you...Hi. I don't know if this will be of use to you, but I have just spotted this. <br /><br />"If the McKinnons find Samuel losing ground after the drug is taken away, one option the family has is to continue with a related drug, baclofen. Baclofen is a muscle relaxant that has been in clinical use for decades, and it actually consists of a mixture of two mirror-image chemicals, one of which is arbaclofen." Extracted from http://www.emoryhealthsciblog.com/?p=6126.<br /><br />Kindest regards and best wishes<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-52082217395620677742013-05-24T00:05:13.435-05:002013-05-24T00:05:13.435-05:00Ha :-) not at all... but a thankful mom, none the...Ha :-) not at all... but a thankful mom, none the less! xoAmy Z.https://www.blogger.com/profile/02771757514672411782noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-15255514295607711642013-05-20T06:44:55.596-05:002013-05-20T06:44:55.596-05:00LOVE those pictures of you with all three gorgeous...LOVE those pictures of you with all three gorgeous kiddos! Best Mom Ever!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-3716069346830946032013-05-15T06:13:11.198-05:002013-05-15T06:13:11.198-05:00There is no better guarantee that you will receive...There is no better guarantee that you will receive the gift you want than if you buy it yourself!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-39320214912727714702013-05-08T16:11:15.905-05:002013-05-08T16:11:15.905-05:00Bummer that you didn't get the house, but exci...Bummer that you didn't get the house, but exciting that you are doing so much to your current house! Remember my dream - maybe you should put on an addition and add a full-size pool to your backyard. ;)Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-61731891987954118772013-05-06T09:27:30.859-05:002013-05-06T09:27:30.859-05:00Welcome back! Great pictures!Welcome back! Great pictures!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-2893922261937567262013-04-10T04:14:35.762-05:002013-04-10T04:14:35.762-05:00Cool! You are so lovely and funny!Cool! You are so lovely and funny!Red Coathttp://www.everbuying.com/Wholesale-Red-Coat.htmlnoreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-72744504552275370422013-04-04T17:11:35.647-05:002013-04-04T17:11:35.647-05:00Thank you so much :-) So glad you found me!!! Ple...Thank you so much :-) So glad you found me!!! Please encourage them to look for our Fragile X groups on Facebook- it's amazing to connect with parents all around the world!Amy Z.https://www.blogger.com/profile/02771757514672411782noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-67593542253694179102013-04-04T07:14:47.214-05:002013-04-04T07:14:47.214-05:00Hi Amy.
Just to let you know that I enjoy your b...Hi Amy. <br /><br />Just to let you know that I enjoy your blogs and am encouraged by your very positive outlook on life. Thanks for being so open.<br /><br />I have two grandsons aged 4 and 2 with Fragile-X, who live on the other side of the world from me, so I cannot support them directly, as much as I would like to. I have sent their parents a link to you : ) They seem to be adjusting quite well, and the children are certainly delightful.<br /><br />Keep up the good work! God bless.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-54170971519005261232013-01-21T20:26:35.757-06:002013-01-21T20:26:35.757-06:00we cry, we sleep, we awake, and put on our big gir...we cry, we sleep, we awake, and put on our big girl panties. And move forward. xoxoxoKathleen Quinnhttps://www.blogger.com/profile/02490775018332263049noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-41185960578866426962013-01-21T20:03:24.955-06:002013-01-21T20:03:24.955-06:00annnnd tears....annnnd tears....Kathleen Quinnhttps://www.blogger.com/profile/02490775018332263049noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-35872400772731332422013-01-21T19:57:04.602-06:002013-01-21T19:57:04.602-06:00Momma has a HAPPY FACE! In these pix - EYES TOO! L...Momma has a HAPPY FACE! In these pix - EYES TOO! Love love love that!!!Kathleen Quinnhttps://www.blogger.com/profile/02490775018332263049noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-56991419105813455302013-01-21T19:52:54.004-06:002013-01-21T19:52:54.004-06:00mmmm Dairy Queen!
And yes, WHO CARES what people t...mmmm Dairy Queen!<br />And yes, WHO CARES what people think? NOT US!!Kathleen Quinnhttps://www.blogger.com/profile/02490775018332263049noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-68159664452569267122013-01-15T09:52:01.409-06:002013-01-15T09:52:01.409-06:00Good job for working out in the morning! A few mo...Good job for working out in the morning! A few months ago I realized that it was the only time I could reliably get a work out in, so that's what I do. I get up at 5:45 to run (it's more like a jog) on our treadmill. I aim for getting up the 5 weekdays, but if I get in 3 days a week, I consider it a success! I like getting it done and out of the way. BUT it's super hard to get up on these cold, dark mornings. I hope the spring and summer will be easier, but it's doubtful :-) I'll think of you in the mornings as I am trudging away on my treadmill!!!Summerhttps://www.blogger.com/profile/16166196064647074408noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-7364949145878376722013-01-10T20:55:22.327-06:002013-01-10T20:55:22.327-06:00Thanks, Amy! I looks like I will be making a trip...Thanks, Amy! I looks like I will be making a trip to Target to stock up on the giraffe-themed Valentine's day items.<br /><br />It is amazing how much the brevity of Grant's life (175 days) puts the rest of our lives in perspective. Thanks so much for keeping Grant and our family in your thoughts!CHhttps://www.blogger.com/profile/08037175353949205644noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-48868247755946029642013-01-09T23:48:13.647-06:002013-01-09T23:48:13.647-06:00funny.... :-) funny.... :-) Amy Z.https://www.blogger.com/profile/02771757514672411782noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-64417856031124105792013-01-09T08:18:58.412-06:002013-01-09T08:18:58.412-06:00Since you are so thankful for exercise, I think yo...Since you are so thankful for exercise, I think you should run the Go! St. Louis Half Marathon with me on April 7. Think of how thankful you can be then! LOTS of exercise! Kitty and Connie are coming in for it. Jim, Sara, Bev, Colleen, and some others are doing it too. Do it!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-91654499997341557052013-01-07T08:15:19.840-06:002013-01-07T08:15:19.840-06:00What a great day! I am happy Abe had a good birth...What a great day! I am happy Abe had a good birthday and you got good news on the job front! Hooray!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-70704207658786358492013-01-06T10:00:59.092-06:002013-01-06T10:00:59.092-06:00Happy Birthday, Abraham!!! I hope this is your be...Happy Birthday, Abraham!!! I hope this is your best year yet. With those Cardinals boxers, you are sure to bring them the luck they need to win another World Series!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-64973447786635888722013-01-05T08:38:43.308-06:002013-01-05T08:38:43.308-06:00I am going to miss my daily dose of Amy!I am going to miss my daily dose of Amy!Kellyshttps://www.blogger.com/profile/09459319948216332098noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-16255025757648148232013-01-04T22:14:07.199-06:002013-01-04T22:14:07.199-06:00How I was wishing for you guys the other day at ou...How I was wishing for you guys the other day at our local kids museum. Watching Nate play in the water activity areas made me think of Abe. There was a fairy tale dress up area that Aurie would love. And I bet Bo would have helped Tristan explore every nook and cranny of the willow maze. Sigh. Miss you. Hugs. Happy birthday Abe-of-the-blue-eyes!leafyNellhttps://www.blogger.com/profile/02887289676626478227noreply@blogger.comtag:blogger.com,1999:blog-4651164539530511360.post-81002804108424854952013-01-02T20:05:34.740-06:002013-01-02T20:05:34.740-06:00Ha a whole lot of crazy outfits in there! Happy Ne...Ha a whole lot of crazy outfits in there! Happy New Year and thanks for being a part of Wardrobe Wednesday this week. :o) Miriamhttps://www.blogger.com/profile/07222932623391963935noreply@blogger.com